Tag Archives: Cancer

Illness Is Not A Moral Failing

Screaming loudly from more than a corner of the quest to repeal and replace the Affordable Care Act is this notion that moral, upstanding people take care of themselves and do not get sick; therefore, they do not need guaranteed health insurance or subsidized premiums to make insurance affordable. This line of thinking suggests we who have chronic illness somehow bring the malaise upon ourselves. We don’t lead clean, healthy lives; instead, we make bad choices which lead to our illnesses. If we put our money on organic food instead of smartphones, I’ve heard said, we’d be healthier. If we pulled ourselves up by our bootstraps and worked to become wealthy like regular Americans, rather than laying around bemoaning our ailments, we’d stop being a drain on the economy . . . and we wouldn’t need to see the doctor so often.

The trouble is, science doesn’t support this kind of thinking. Having a chronic autoimmune disease like celiac disease as I do, or Sjogren’s as my sister does, or ankylosing spondylitis as my other sister does, is more a fuction of genetics plus environmental risk factors than of moralilty. Continue reading Illness Is Not A Moral Failing

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Losing Pieces of Me

“Your surgery is set for August 20th at 10:30 am. Please arrive two hours early. Nothing to eat or drink after midnight. You’ll need someone to drive you home the next day. Call Monica for a cost estimate.”

DSC00597I was riding a bike through the woods of coastal Georgia when the call came. We just had stopped to swig some water and to admire the beautifully dissonant scenery. I’d never before seen woods composed of palmettos and pines, Spanish moss and yaupon holly.

It became real as I stood on a rise overlooking the salt marsh: I’m losing several organs.

We’re not talking your run-of-the-mill organs like the spleen or a kidney or a section of the colon. No, I’m losing the ones that make me a woman, the organs that separate the female from the male and even the women from the girls. I’m losing my ovaries, fallopian tubes, uterus, and cervix. Continue reading Losing Pieces of Me